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Chee Heng Leng, Laila El-Hamamsy, John Fleming, Norio Fujiki, Genoveva Keyeux, Bartha Maria Knoppers and Darryl Macer
This report examines the ethical issues of population genetics, their philosophical basis, their research methodologies, the possible uses of research results and the need for education to address fears of stigmatisation and discrimination.
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Harold Edgar and Ricardo Cruz-Coke (Rapporteurs)
This paper principally addresses the issue of whether and to what extent individuals or groups have a ‘right’ to experimental treatment, or at least to have access to it without undue government interference.
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Mr Jean-Didier Vincent (Rapporteur)
This report shows the extensive scope of what are referred to today as the neurosciences. While the neurosciences do bring hope, notably in the area of mental health, they are also a particularly dangerous terrain for genetic manipulation and for the use of pharmacology and computer science for behavioural ends. The purpose of this report is to examine in a clear-sighted way and without complacency, the hopes and risks involved and to issue a few warnings of an ethical nature.
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Darryl Macer (Rapporteur)
This report examines (1) the roles of plant biotechnology in food production, (2) ethical concerns about plant biotechnology, (3) regulation of food safety and biotechnology and (4) the role of UNESCO
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Michel Revel (Rapporteur)
This Report examines first the scope and practice of genetic counselling today, then bioethical issues related to scientific questions, to welfare of the persons receiving counselling and finally to moral issues for society at large.
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Sylvia Rumball and Alexander McCall Smith (Rapporteurs)
The purpose of the Report is to document the range of issues contained within the topic “Collection, Processing, Storage and Use of Human Genetic Data”. It will be used by the Drafting Group of the IBC as a working document for the drawing up of an international instrument on human genetic data.
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Justice Michael Kirby (Rapporteur)
This report addresses The fundamental issue of this report is how to secure the benefits of the first draft of the human genome sequence for the service of humanity as a whole.
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Hans Galjaard (Rapporteur)
The purpose of this report is to describe pre-implantation genetic diagnosis and discuss the major ethical issues related to its applications and to review the ethical aspects of germ cell intervention in this context.
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Mehmet Öztürk (Rapporteur)
Report of the Working Group of the IBC.
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Giovanni Berlinguer and Leonardo De Castro (Rapporteurs)
This report, which is based on the discussions in the Working Group and the IBC, examines the feasibility of an international instrument on bioethics within the context of existing international legal instruments relating to the subject. It also examines some issues in bioethics that could be addressed in an international instrument, the likely form and scope of an instrument and its value in terms of education, information dissemination, awareness-raising and public debate.
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Working Group of the IBC on Confidentiality and Genetic Data
Report of the Working Group of the IBC on Confidentiality and Genetic Data.
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Mr David Shapiro (Rapporteur)
This Report was prepared on behalf of a Subcommittee established by the IBC.
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Mr Harold Edgar and Mr Thomas Tursz (Rapporteurs)
This Report on genetic therapy was prepared on behalf of a Subcommittee established by the International Bioethics Committee (IBC) for the full Committee's use at its September 1994 meeting.
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Alexander McCall Smith and Michel Revel (Rapporteurs)
This report on the ethical aspects of human embryonic stem cell research was discussed at the Seventh Session of the International Bioethics Committee (Quito, Ecuador, 7-9 November 2000) and finalized after the meeting of the Extended Working Group on the Ethical Aspects of Embryonic Stem Cell Research (UNESCO Headquarters, 29 January and 2 February 2001).
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